hEDS, POTS & MCAS: Research Landscape Document – Funding, Affiliations & Study Design
About This Document This document maps the current research landscape for hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and their overlap — referred to as the Trifecta. Each entry documents the study, its authors, methodology, sample size, key finding, funding source, and sample provenance where declared. This transparency […]
Hope in Action: Contributing to the Future of Hypermobile Ehlers-Danlos Syndrome (hEDS) Care
Last year, I took part in a research study exploring the design of a digital pain management program for people with Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD).