Patient Resources
List of Resources
| Document Name | Format | Description | Download |
|---|---|---|---|
| Caregiver Guidance- Supporting Autonomic Crises in hEDS POTS.pdf | Practical steps for caregivers to safely support someone during a POTS or hEDS crisis. | View here | |
| Dysautonomia Patient Guideline V1.0.pdf | Describes common symptoms of nervous system imbalance in POTS and hEDS and home support ideas. | View here | |
| Fascia & the ECM- The Body's Hidden Network.pdf | Explains how stretchy connective tissue affects pain, fatigue, and body communication in hEDS. | View here | |
| Final_Gut_Support_Table.pdf | Lists food and supplement options to calm gut issues and support digestion in hEDS. | View here | |
| ConnectED Health Position Statement- Clinical Advisory on Chronic Illness V1.0 17102025.pdf | Summarises ConnectED Health's clinical stance on managing chronic multisystem illness through research-informed, patient-centred care. | View here | |
| One-Page Clinical Summary – Home Triage Report v2.pdf | Summarises key personal health details for quick sharing with doctors during flares or emergencies. | View here | |
| A Patient Guide to i-screen Testing for hEDS, POTS & MCAS V1.0.pdf | Explains how patients can order lab tests themselves to track flare patterns and recovery. | View here | |
| Lymphodema Patient Guideline V1.0.pdf | Offers advice for managing swelling, fluid pooling, and gentle ways to care for tissues. | View here | |
| MCAS Patient Guideline V1.0.pdf | Helps patients recognise mast cell reactions, triggers, and safe ways to reduce flare-ups. | View here | |
| POTS Patient Guideline - The Postural Spiral.pdf | Describes what happens in POTS, why standing causes dizziness, and daily coping strategies. | View here |
List of Resources
Practical steps for caregivers to safely support someone during a POTS or hEDS crisis.
Describes common symptoms of nervous system imbalance in POTS and hEDS and home support ideas.
Explains how stretchy connective tissue affects pain, fatigue, and body communication in hEDS.
Lists food and supplement options to calm gut issues and support digestion in hEDS.
Summarises ConnectED Health's clinical stance on managing chronic multisystem illness through research-informed, patient-centred care.
Summarises key personal health details for quick sharing with doctors during flares or emergencies.
Explains how patients can order lab tests themselves to track flare patterns and recovery.
Offers advice for managing swelling, fluid pooling, and gentle ways to care for tissues.
Helps patients recognise mast cell reactions, triggers, and safe ways to reduce flare-ups.
Describes what happens in POTS, why standing causes dizziness, and daily coping strategies.