Hypermobile Ehlers-Danlos Syndrome (HEDS)
A Commonly Misunderstood Condition with Real-Life Impact
Hypermobile Ehlers-Danlos Syndrome (hEDS) is a heritable connective tissue disorder that affects joints, skin, and various body systems. One of the most common—but also most misunderstood—forms of hEDS is characterised by joint hypermobility, chronic pain, fatigue, and a range of other symptoms that can be disabling and difficult to explain.
That’s why we created the ConnectED Health Assessment App. This world-first innovation helps you document your symptoms in a structured, evidence-based report—so you can walk into your next medical appointment feeling seen, supported, and empowered to advocate for your care.
Symptoms of Hypermobile Ehlers-Danlos Syndrome (hEDS)
Musculoskeletal
- Joint Hypermobility
- Joint Pain
- Joint Dislocations or Subluxations
- Muscle Fatique or Weakness
- Poor Posture and Alignment
Non-Musculoskeletal
- Fatigue
- Dizziness or Fainting
- Digestive Problem
- Easy Bruising
- Anxiety
- Soft, Stretchy, or Fragile Skin
- Poor Posture and Alignment
- Delayed Wound Healing or Wide Scars
A Complex Condition That’s Often Overlooked
People with hEDS often experience, soft or stretchy skin, digestive issues, easy bruising, and persistent fatigue. Emerging science has recognised strong correlations with Long COVID, Neurodivergence and immunological disorders. The condition commonly overlaps with other disorders like Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS), which adds to the complexity—and confusion—during the diagnostic process.
Many individuals live for years without a name for their symptoms. The physical toll is significant—but so is the emotional impact. Not being believed, misunderstood, or told “it’s all in your head” can leave people feeling isolated and disheartened.
A Complex Condition That’s Often Overlooked
At ConnectED, we understand how difficult it can be to navigate life with hEDS—or even reach a diagnosis. Our app was created to help people like you track, understand, and communicate your symptoms in a structured, evidence-based way. The personalised report generated by the app is designed to support more informed discussions with your healthcare provider.
While ConnectED doesn’t provide a diagnosis, it empowers you to take control of your health journey—bridging the gap between what you feel and what clinicians see.